Will's EEG

Well this morning started off fun- two more seizures! Poor Will. One was around 5:30am and the other around 8:20am. I was able to get good video of both. And he didn't have a temperature.

I called the doctor, knowing the original EEG was scheduled for tomorrow morning, but figuring he'd still like to know about it. After a few phone calls and more information from the nurse, she called me back saying they wanted to see him today and do his EEG as well.

So off we went. Dropped Amy at a friends, Lee canceled class (I'm sure they were happy!) and to the Doctor's office we went.

Will did great. He didn't even fuss too much when she was putting the 25 electrode things onto his head. Lee and I took turns keeping him distracted and laying with him. The nurse said, "Wow- you guys look like you are a great team!" We loved that. :)

Attaching the electrodes

She ran a serious of strobe lights and then put on some lullaby music. We were all praying that he'd fall asleep. And guess what??!! He DID! Thank you all of heaven! The nurse was so nice- she was praying too (they want them to sleep to see their resting brain activity).

sorry it's dark- the room was dark and I was afraid to wake him up using the flash

It was neat seeing his resting brain waves (on the monitor, I didn't get a picture of that). In fact, he was so sound asleep, that we couldn't wake him up. She wanted to get his brain waves while he was waking up.

Sweet Angel

Once she started pulling the things off his head, he woke up. After that we met with the doctor. He asked a bunch of questions, we asked a bunch of questions. In the end, we decided that a very low dose anti-seizure medication would be best. Will is having too many unexplained seizures, and they are getting longer and more frequent. The Dr said he should grow out of them, but in the meantime the medication will help prevent them. He also wants him to have an MRI.

So that's what we'll do. Poor little thing. What a morning he's had! He's sound asleep right now. But I'm really glad all this happened today. Because he'd already had a seizure they were able to look at that part of the brain more closely. And I really wasn't looking forward to the "keep him awake all night and get up early" day we had planned for tomorrow. Now we can all rest instead!

So our thankful list today includes:

• Modern medicine. Doctors that have studied hard in school and their knowledge is so useful now. The nurse said our Dr. is the "best at babies," that's comforting! Also medications. I'm not always the first to give medication, but in cases like this, I'm grateful it's around! 
• Modern technology. Through the awesomeness of our cell phones, we've been able to video capture almost every seizure. So the doctor got to see, first hand, the seizures instead of relying on our descriptions. 
• My teammate Lee. We've gotten pretty good at tag-teaming these episodes. He keeps time ( I have GOT to get batteries in my watch!!) and runs for the medication, I hold Will and monitor his progress. It was fun that the nurse noticed it too. 
• Wonderful, caring family and friends. I was able to drop Amy off at the Stout's without any hesitation from Roberta. We've both gotten numerous texts and messages from everyone we know. Everyone loves our little guy! 
• Insurance! Lee said to Will, "I'm sure glad you waited until I was employed before you started all of this!" We have really, really good insurance. And the medical savings plan is the greatest thing. Money is pulled from Lee's paycheck and put into an account. We can pay co-pays, prescriptions, etc out of it- it's been a blessing!! 

Thanks everyone! Our little guy will be ok. :)